The Ankylosing Spondylitis Podcast

The Ankylosing Spondylitis Podcast header image 1
August 21, 2019  

Ep 013: 10 Things Not To Say To Someone With Ankylosing Spondylitis

In this episode, I review an article titled 10 Things Not To Say To Someone With AS. I applied my experiences to this article and I encourage you to do the same.

 

Mentioned in the show:

 

https://www.healthline.com/health/beyond-back-pain-with-as/things-not-to-say#1

www.tm.org

August 16, 2019  

Ep 012: To biologic or not to biologic - My thoughts on Biologics

In this episode, I look at some basics of biologics like Enbrel, Humira, Cosentyx and my experience with those items. There are numerous biologics available to patients with Ankylosing Spondylitis and the correct one for you may take some time to find as you try different options and your rheumatologist tracks your health.

 

Below are some links to articles that discuss biologics in very basic terms.

 

https://www.healthline.com/health/beyond-back-pain-with-as/will-biologics-work#4

https://www.healthline.com/health/beyond-back-pain-with-as/biologic-science#4

https://www.healthline.com/health/beyond-back-pain-with-as/biologic-options#1

August 15, 2019  

EP 011: My AS Fusion Journey - A short discussion

In this short episode, I discuss my fusion journey and some of the things I encountered as well as some of the things I do now to fight off fusion. I reference the following two articles in this episode:

 

https://www.healthline.com/health/progression-of-ankylosing-spondylitis#who-is-affected?

 

https://www.healthline.com/health/ankylosing-spondylitis-men-and-women#1

If you are looking for great vitamins, or CBD oil I would ask that you consider purchasing from my webpage. It doesn't increase your cost but does allow my site to earn a small commission to help keep this going.

July 24, 2019  

Ep 010: My Disability Journey

In this episode, I cover some of the basics of my process to get on SSDI. My case was unique compared to many, so please do your research if you are applying for SSDI. My information is in no way legal advice, so please consult an attorney for any specific questions you may have.

 

The place to start is the Social Security Website. Here is a listing of what you need to apply for disability (https://www.ssa.gov/hlp/radr/10/ovw001-checklist.pdf). There are also some good sites that provide disability information. Here is a list of some I have looked at. Please be aware that some of these sites are from attorneys and I am not recommending that you use them. I just like the information that is provided.

 

https://www.disability-benefits-help.org/cpc/about-ssdi?utm_source=bing&utm_medium=cpc&utm_term=ssdi&utm_content=SSDI%20vs%20SSI&utm_campaign=SSD+-+Phrase&__egma[MatchType]=p&__egma[Device]=c&__egma[Creative]=77790493266508&msclkid=9652b544f2f219c51abae872d4a03694

 

https://www.spondylitis.org/Spondylitis-Plus/social-security-disability

 

https://www.disability-benefits-help.org/disabling-conditions/ankylosing-spondylitis

 

Videos 

https://www.youtube.com/user/ginsbergssd

July 21, 2019  

Ep 009: 11 Tips for Living with Chronic Pain

In this 9thepisode of The Ankylosing Spondylitis Podcast,  I go over 11 tips that can help to live with chronic pain. This article (https://www.webmd.com/pain-management/guide/11-tips-for-living-with-chronic-pain#2) from WebMD discusses the 11 items.

Here is a starting point for meditation if interested. This YouTube video (https://youtu.be/KQOAVZew5l8) can give you a spot to start, but you can also do your own search to find a course you like.

 

If you are looking to eat better/loose weight, here is a link to Vinnie Tortorich’s website (https://vinnietortorich.com).

 

Here is Gina Grad’s food blog for food using the No Sugar No Grains method of cooking (https://grainfreecomfortfood.com).

July 15, 2019  

Ep 008: Susan Bratton - Lets talk about sex… Intimacy and romance

Lets talk about sex, intimacy, and being with your partner. In this episode I speak with Susan Bratton.

 

Susan Bratton is considered the Dear Abby of Sex. She's a problem solver for sexual situations. And she extolls wisdom that comes from helping sexual seekers with reality-based, 21st century solutions.

She writes books, publishes online sexual home study programs, does TV appearances, speaks from stages, has an AMAZING (and sexy!) YouTube channel and Instagram feed and the energy to perk you up and give you more than hope... Susan gives actionable advice you can take to the bedroom.

I'm thrilled to have her on the show and she has a free gift for us today from her Amazon #1 international best seller, Sexual Soulmates called, The Sexual Soulmate Pact. 

http://sexualsoulmatepact.com

 

You can find Susan online at

Susan Bratton - https://susanbratton.com

Twitter - @SusanBratton

Instagram - @SusanBratton

YouTube -  Susan Bratton – Better Lover

Please share this podcast with your family and friends that have Ankylosing Spondylitis or are with someone with AS.

February 18, 2019  

Ep 007: Gina Ryan - Dealing with Anxiety

In this episode, I chat with Gina Ryan (theanxietycoachespodcast.com). Gina assists people in an online group sessions or one to one sessions to deal with anxiety. Gina’s podcast (podcast episode index) can provide you with a wealth of information to assist you and provide you with some insight into how Gina can assist you.

You can interact/connect with Gina via her website, Facebook, Twitter, Pinterest, Instagram, and LinkedIn.

You can subscribe to the podcast via iTunes, Google Play, Stitcher, Soundcloud, and Spotify.

January 18, 2019  

Ep 006: My Name is AS and 4 Reasons to Start Treating your AS

In this episode, I read an item I found on Instagram. It was shared from the page Kylie’s Race to beat Ankylosing Spondylitis page (https://www.facebook.com/kyliesrace/) and is called My Name is AS. Please head on over and give her page a like to follow her journey.

I then review an article from the website Healthline titled “4 Reasons to Start Treating Your AS Now” by Annette McDermott (https://www.healthline.com/health/ankylosing-spondylitis/living-better/reasons-to-start-treating#1).

January 11, 2019  

Ep 005: Ricky White - Author and AS Warrior

In this episode, I interview Ricky White, author and current President of Walk AS One. Ricky (www.rickywhite.net) was diagnosed in 2010 with Ankylosing Spondylitis and it would lead him on a whole new journey. He was a nurse at the time and AS left him at times unable to easily perform the physical side of nursing. Through the years, Ricky transformed to a stay-at-home dad while his wife went to work when they moved to the United States. He was doing a blog (www.endlesstrax.com) that was popular in the AS community. He no longer posts to it, but the works are still there to read.

 

If being a stay at home father and getting  back into karate wasn’t enough,  Ricky started helping to found the 501c3 charity  Walk AS One (www.walkasone.org). The group wants to see everyone with AS keep moving to fight the affects of AS that can happen with a lack of exercise/movement. In May of each year for AS Awareness Month, there is the event Walk Your AS Off (www.walkyourasoff.com).

 

Ricky has written both fiction and a non-fiction book. The non-fiction is a great book to help you be your own advocate for dealing with your doctors. The book is called Taking Charge: Making Your Healthcare Appointments Work for You (http://mybook.to/taking-charge) that is available from Amazon. As both a nurse and patient, Ricky’s book can help you structure your appointments so that you can work to get your questions answered and become your best advocate for treatment.

 

The Ankylosing Spondylitis Podcast shirts are now available for order. Follow this link lakeshoregraphics.net/fundraisers

 

I am collecting orders till end of February (2019) and then shirts will be created and mailed.

 

Also, the Patreon page is up, follow this link: www.patreon.com/aspodcast

January 2, 2019  

Ep 004: 29 Things About AS You Should Understand.

In this episode, I review an article by Elaine E. Rushnell titled 29 Things Only Someone with Ankylosing Spondylitis Would Understand. You can access the article on www.healthline.com and here is a direct link (https://www.healthline.com/health/ankylosing-spondylitis/living-better/29-things#1).

 

If you have done one of the commercial DNA tests, let me know, I would be curious to hear about results.